today was a particularily bad day for him, maybe the worst since he came
home, but overall he is progressing, slowly but still progress, he had me
put another rubberband on his hand exerciser a couple of days ago, and he is
enough back to himself to start worrying about what he still can't do, he
may never be able to drive again, but his speech and walking are good, his
memory is improving, and he is finding more words than he was before unless
he is tired. Lee

Marion had a stroke two years ago. Seemed fairly minor with very
little resulting disability, but the tiredness was a real problem -
she didn't get back to a reasonable energy level for a year. There
doesn't seem to be much hard knowledge about post-stoke tiredness -
Marion participated in a study in Edinburgh that was led by a doctor
from Central Asia who seems to be one of the few people in the world
to make it his main focus of research. But no useful results yet.

She's never going to drive again (not that she did before, except
recreationally on a motorbike) - she thinks her reaction time has
slowed too much to be safe.

It seems that overt disability tends to along with less tiredness.
But stroke recovery is very unpredictable.

The NHS here doesn't do great job with it. Marion's aftercare was
nowhere near as good as what I got after my heart attack, which was a
lot less serious. And stroke care varies a lot across the UK. The
most helpful people were the advisers from the Chest, Heart and Stroke
charity - if you have something comparable where you are, call them.

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Jack Campin, 11 Third Street, Newtongrange, Midlothian EH22 4PU, Scotland
mobile 07800 739 557 http://www.campin.me.uk Twitter: JackCampin