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#1
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i got allocated a Macmillan nurse
http://www.macmillan.org.uk/HowWeCan...rMtA od-lcAxQ
so I guess it might be bad news eh? If you get a Macmillan nurse, it's probably serious. |
#2
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i got allocated a Macmillan nurse
"Christina Websell" wrote in message ... http://www.macmillan.org.uk/HowWeCan...rMtA od-lcAxQ so I guess it might be bad news eh? If you get a Macmillan nurse, it's probably serious. ~~~~~~~ Perhaps it is just good care because you also have physical problems stemming from your fall. At least, that is what I hope it is. If it were me, I think I would ask my doctor. Otherwise, I would worry about it. MaryL |
#3
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i got allocated a Macmillan nurse
"Judith Latham" wrote in message ... In article , Christina Websell wrote: http://www.macmillan.org.uk/HowWeCan...rMtA od-lcAxQ so I guess it might be bad news eh? If you get a Macmillan nurse, it's probably serious. I've checked online and these nurses are increasingly supporting people who have non-cancer ailments. Who has told you you've been allocated one? My respiratory consultant. I had something found on my lung when I had CT scans a year ago when I fell down the stairs and got to see him. However, I think you need to ask your Doctor why you've been allocated a macmillan nurse. As no one up until now has mentioned even a vague possibility of cancer this would be a very nasty way to tell you, now wouldn't it? I know why. I had ovarian ca in 2005 and 10 years later is about the time it might pop up again somewhere else. He says not to worry too much as it's likely to be benign and even if it isn't I'm likely to outlive it. Don't trust them too much, as I was told I would die in 2005, I made arrangements for my cat.. Have you contacted your doctor today? If not, try to do it tomorrow. No. Purrs and prayers that you're jumping to the wrong conclusion. Unlikely. You don't get a Macmillan nurse unless it's quite serious. They are cancer nurses who allow you to die in a good way. No intention of dying yet. |
#4
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i got allocated a Macmillan nurse
On 2/17/2015 8:52 PM, MaryL wrote:
"Christina Websell" wrote in message ... http://www.macmillan.org.uk/HowWeCan...rMtA od-lcAxQ so I guess it might be bad news eh? If you get a Macmillan nurse, it's probably serious. ~~~~~~~ Perhaps it is just good care because you also have physical problems stemming from your fall. At least, that is what I hope it is. If it were me, I think I would ask my doctor. Otherwise, I would worry about it. MaryL She has me killfiled so she won't see this. I would certainly ask why I'd been assigned such a nurse. If I don't understand something I question the doctor. So many people seem to be afraid to question doctors. I have no idea why. Jill |
#5
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i got allocated a Macmillan nurse
jmcquown wrote: She has me killfiled so she won't see this. I would certainly ask why I'd been assigned such a nurse. If I don't understand something I question the doctor. So many people seem to be afraid to question doctors. I have no idea why. Jill I not only question, but ARGUE with him/her when I don't agree! It's MY body, and MY life, so I won't take any medication unless I know what it is supposed to do, what the side-effects can be, and what will happen if I DON'T take it. Americans have become a nation of pill-takers as it is - one of the more frightening effects being teen-age "pharm parties" with the sometimes fatal results. (When I was a teen-ager, the family medicine cabinet would only have yielded aspirin, Exlax, Milk of Magnesia, Pepto Bismol, and maybe cod liver oil - nothing half-way tempting, and we KNEW the effects of all of them.) |
#6
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i got allocated a Macmillan nurse
On 2/20/2015 3:36 PM, EvelynVogtGamble(Divamanque) wrote:
jmcquown wrote: She has me killfiled so she won't see this. I would certainly ask why I'd been assigned such a nurse. If I don't understand something I question the doctor. So many people seem to be afraid to question doctors. I have no idea why. Jill I not only question, but ARGUE with him/her when I don't agree! It's MY body, and MY life, so I won't take any medication unless I know what it is supposed to do, what the side-effects can be, and what will happen if I DON'T take it. Americans have become a nation of pill-takers as it is - one of the more frightening effects being teen-age "pharm parties" with the sometimes fatal results. (When I was a teen-ager, the family medicine cabinet would only have yielded aspirin, Exlax, Milk of Magnesia, Pepto Bismol, and maybe cod liver oil - nothing half-way tempting, and we KNEW the effects of all of them.) I'm reminded of when I was hospitalized for diverticulitis in 2008. In post discharge follow up visits the gastric surgeon kept pushing me, telling me I'd wind up with an ostomy bag within three years if I didn't let him cut out half my colon. Major surgery. On about the third visit I said to him, "You *do* realize I don't have health insurance, right?" That's when he abruptly switched gears and handed me pamphlets about modifying my diet. My hospital discharge papers had already recommend those changes. I figured out pretty quickly if I'd had some insurance company for him to bilk he's have cut me open for no good reason. It's 2015 and guess what? No ostomy bag in sight. The doctor I have seen most recently (January) doesn't think I actually had diverticulitis. I had an infection, yes. But I've recently been diagnosed with Crohn's Disease. When I sat down and talked with this guy he explained exactly what part of the illeum (in the lower intestine) is affected. He prescribed appropriate medication. He answered my questions, and believe me, I had tons of them. I always had a problem with my mom's doctors constantly shoving pills and prescriptions at her without ever actually offering a specific diagnosis. At one point she was taking over 20 prescriptions. Several times a day. Mom was of that generation who thought if someone had a medical degree meant they were somehow superior beings. Hey, as with any profession, there are good doctors and bad ones. I don't know much about the medical system in the UK, obviously, but I know I wouldn't just let them assign me a nurse or whatever without bothering to ask why. Jill |
#7
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i got allocated a Macmillan nurse
wrote: jmcquown wrote: She has me killfiled so she won't see this. I would certainly ask why I'd been assigned such a nurse. If I don't understand something I question the doctor. So many people seem to be afraid to question doctors. I have no idea why. Jill I not only question, but ARGUE with him/her when I don't agree! It's MY body, and MY life, so I won't take any medication unless I know what it is supposed to do, what the side-effects can be, and what will happen if I DON'T take it. Americans have become a nation of pill-takers as it is - one of the more frightening effects being teen-age "pharm parties" with the sometimes fatal results. (When I was a teen-ager, the family medicine cabinet would only have yielded aspirin, Exlax, Milk of Magnesia, Pepto Bismol, and maybe cod liver oil - nothing half-way tempting, and we KNEW the effects of all of them.) One pill makes you larger And one pill makes you small And the ones that mother gives you Don't do anything at all Go ask Alice, when she's ten feet tall. -- :-) Don't let the Zombies get you!!!! |
#8
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i got allocated a Macmillan nurse
I don't know much about the medical system in the UK, obviously,
but I know I wouldn't just let them assign me a nurse or whatever without bothering to ask why. Macmillan is a charity and far as I know they're somewhat independent of the NHS. A doctor can't just order up a Macmillan nurse without the charity agreeing to it, or at least checking that the nurse is being used for a task that meets their remit. They are skilled people, specializing in terminal care, usually for cancer. There isn't any comparable organization in the US, as far as I know. http://www.macmillan.org.uk/Home.aspx ----------------------------------------------------------------------------- e m a i l : j a c k @ c a m p i n . m e . u k Jack Campin, 11 Third Street, Newtongrange, Midlothian EH22 4PU, Scotland mobile 07800 739 557 http://www.campin.me.uk Twitter: JackCampin |
#9
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i got allocated a Macmillan nurse
"Jack Campin" wrote in message ... I don't know much about the medical system in the UK, obviously, but I know I wouldn't just let them assign me a nurse or whatever without bothering to ask why. Macmillan is a charity and far as I know they're somewhat independent of the NHS. A doctor can't just order up a Macmillan nurse without the charity agreeing to it, or at least checking that the nurse is being used for a task that meets their remit. They are skilled people, specializing in terminal care, usually for cancer. There isn't any comparable organization in the US, as far as I know. http://www.macmillan.org.uk/Home.aspx ----------------------------------------------------------------------------- e m a i l : j a c k @ c a m p i n . m e . u k Jack Campin, 11 Third Street, Newtongrange, Midlothian EH22 4PU, Scotland mobile 07800 739 557 http://www.campin.me.uk Twitter: JackCampin ~~~~~~ Hospice is the closest I can think of in the U.S. that fits your description. They are skilled nurses and are intended for palliative care. There are numerous hospice homes, but they will also go into private homes and even nursing homes. They were originally intended for people where death was expected within 6 months, but that does not seem to be a criteria now. They try to make life more comfortable for terminally ill patients (or incurably ill) and their families. My sister-in-law suggested that I get hospice care for my mother when she was near the end of her life, but her doctor told me that she would not benefit because she was already in a nursing home and was getting round-the-clock nursing care. In addition, I could control her care, and she could benefit from hospitalization when needed with medication that went beyond palliative care. There is considerable controversy about that last statement. My description of hospice care would not fit Christina's situation at all, but it is the closest thing in the U.S. that I can think of that sounds somewhat like your description of Macmillan. We do have home health care, of course, but that is not only for terminal care. MaryL |
#10
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i got allocated a Macmillan nurse
"EvelynVogtGamble(Divamanque)" wrote in message ... jmcquown wrote: She has me killfiled so she won't see this. I would certainly ask why I'd been assigned such a nurse. If I don't understand something I question the doctor. So many people seem to be afraid to question doctors. I have no idea why. Jill I not only question, but ARGUE with him/her when I don't agree! It's MY body, and MY life, so I won't take any medication unless I know what it is supposed to do, what the side-effects can be, and what will happen if I DON'T take it. Americans have become a nation of pill-takers as it is - one of the more frightening effects being teen-age "pharm parties" with the sometimes fatal results. (When I was a teen-ager, the family medicine cabinet would only have yielded aspirin, Exlax, Milk of Magnesia, Pepto Bismol, and maybe cod liver oil - nothing half-way tempting, and we KNEW the effects of all of them.) I'm not talking about medication that may unnecessary in my case, Evelyn. It was "your neck is fractured and partially dislocated and if you don't want to risk your C6/C7 fracture slipping (and be in a Christopher Reeve situation) sign this consent form now" It was a no-brainer. It's a pity he didn't have time to warn me about it though. I've never totally forgiven him for that and I have told him so. He didn't like it one bit. I was almost in hysterics when the nurses came to take my blood "for your operation in the morning" I felt sure they had me mixed up with someone else, and I was going to get someone's else's operation. .. |
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