OT - Ouch!!!

On 11/18/2011 11:06 PM, jmcquown wrote:

"CatNipped" wrote in message
...
On 11/18/2011 8:31 AM, ~Karen~ wrote:
On 11/17/2011 8:04 PM, CatNipped wrote:
I gave myself my first injection (of Lovemax*) and it was terrifying
until I finally stuck it in - I hardly felt that, it's a teensy little
needle - but that serum BURNS. It's STILL burning.

* We didn't have to pay for this since I looooong ago met my
out-of-pocket expense. But coming January 1, 2012, we would have to pay
$32300 US for each injection (every day). I say "would" because we're
not going to be able to pay $960 - $992.00 US. We have too many
$500.00+
prescriptions and I'm wondering how we're going to do that with us
already in a deep dark financial hole. The oncologist is going to have
to put me on the second best med (probably Coumadin) and hope for the
best.


Have you tried contacting these people?

https://patientassistanceprogram.san...ement_pat.aspx



A quick glance at the site indicates that household income strongly
determines if aid is available or not. Some of your other prescriptions
might also meet criteria for financial aid. I may have been told wrong
but I understood that when you became eligible for SS Disability you
were also eligible for Medicare benefits.

Wishing you the best
Karen

Thanks,and thanks for the correct spelling of the drug. I still don't
think we'll qualify, but I'm at least going to try. Thanks again!

--
Hugs,

CatNipped
See all our masters at: http://www.PossiblePlaces.com/CatNipped


Can't hurt to fill out the paperwork. The squeaky wheel gets the grease

Jill

Too true, I talked about it with my in-home occupational therapist and
she said she'd put in a request to their office (it's the same agency
the nurses work out of) to have a social worker come out to my house and
help us with things like that. She recommended "Meals on Wheels", but I
don't think those are free. But wasn't there some food organization you
used to suggest where you could get great deals on buying food?



--
Hugs,

CatNipped
See all our masters at: http://www.PossiblePlaces.com/CatNipped

See the RPCA FAQ site, created by "Yowie", maintained by Mark Edwards, at:
http://www.professional-geek.net/rpcablog/

Email: L(dot)T(dot)Crews(at)comcast(dot)net

"CatNipped" wrote in message
...
On 11/18/2011 11:06 PM, jmcquown wrote:

"CatNipped" wrote in message
...
On 11/18/2011 8:31 AM, ~Karen~ wrote:
On 11/17/2011 8:04 PM, CatNipped wrote:
I gave myself my first injection (of Lovemax*) and it was terrifying
until I finally stuck it in - I hardly felt that, it's a teensy little
needle - but that serum BURNS. It's STILL burning.

* We didn't have to pay for this since I looooong ago met my
out-of-pocket expense. But coming January 1, 2012, we would have to
pay
$32300 US for each injection (every day). I say "would" because we're
not going to be able to pay $960 - $992.00 US. We have too many
$500.00+
prescriptions and I'm wondering how we're going to do that with us
already in a deep dark financial hole. The oncologist is going to have
to put me on the second best med (probably Coumadin) and hope for the
best.


Have you tried contacting these people?

https://patientassistanceprogram.san...ement_pat.aspx



A quick glance at the site indicates that household income strongly
determines if aid is available or not. Some of your other prescriptions
might also meet criteria for financial aid. I may have been told wrong
but I understood that when you became eligible for SS Disability you
were also eligible for Medicare benefits.

Wishing you the best
Karen

Thanks,and thanks for the correct spelling of the drug. I still don't
think we'll qualify, but I'm at least going to try. Thanks again!

--
Hugs,

CatNipped
See all our masters at: http://www.PossiblePlaces.com/CatNipped


Can't hurt to fill out the paperwork. The squeaky wheel gets the grease


Jill

Too true, I talked about it with my in-home occupational therapist and she
said she'd put in a request to their office (it's the same agency the
nurses work out of) to have a social worker come out to my house and help
us with things like that. She recommended "Meals on Wheels", but I don't
think those are free. But wasn't there some food organization you used to
suggest where you could get great deals on buying food?


Angel Food Ministries. They went belly-up. It was supposed to be a
non-profit charity, and for a number of years it was. But then the founders
got greedy. Suddenly it wasn't about helping people feed a family anymore,
it was about how much money can I make running this organization? They were
paying themselves 6-figure salaries. They shut down before they could *be*
shut down. It's a shame, because they really did help some people with less
expensive groceries for a while.

Jill

jmcquown wrote:

Angel Food Ministries. They went belly-up. It was supposed to be a
non-profit charity, and for a number of years it was. But then the founders
got greedy. Suddenly it wasn't about helping people feed a family anymore,
it was about how much money can I make running this organization? They were
paying themselves 6-figure salaries. They shut down before they could *be*
shut down. It's a shame, because they really did help some people with less
expensive groceries for a while.

Oh, I'm sorry to hear that. My mother was helped by them when she lived
in Florida. It was a really good deal. I hate it when a good charity
organization becomes corrupt, or just overly bureaucratic and useless.

--
Joyce

Socialism never took root in America because the poor see
themselves not as an exploited proletariat but as temporarily
embarassed millionaires.
--John Steinbeck

wrote in message
...
jmcquown wrote:

Angel Food Ministries. They went belly-up. It was supposed to be a
non-profit charity, and for a number of years it was. But then the
founders
got greedy. Suddenly it wasn't about helping people feed a family
anymore,
it was about how much money can I make running this organization? They
were
paying themselves 6-figure salaries. They shut down before they could
*be*
shut down. It's a shame, because they really did help some people with
less
expensive groceries for a while.

Oh, I'm sorry to hear that. My mother was helped by them when she lived
in Florida. It was a really good deal. I hate it when a good charity
organization becomes corrupt, or just overly bureaucratic and useless.

--
Joyce

This is why I distrust most charities. Greed overtook the good intentions.
IIRC most of the food was donated so I don't know why they were paying
themselves ridiculous salaries and misappropriating funds. There is a new
organization called OneHarvest (the people who started it used to work for
Angel Food and want to fill the gap). It doesn't appear to be available
nationwide yet.

Jill

On 11/19/2011 8:23 AM, jmcquown wrote:

wrote in message
...
jmcquown wrote:

Angel Food Ministries. They went belly-up. It was supposed to be a
non-profit charity, and for a number of years it was. But then the
founders
got greedy. Suddenly it wasn't about helping people feed a family
anymore,
it was about how much money can I make running this organization?
They were
paying themselves 6-figure salaries. They shut down before they
could *be*
shut down. It's a shame, because they really did help some people
with less
expensive groceries for a while.

Oh, I'm sorry to hear that. My mother was helped by them when she lived
in Florida. It was a really good deal. I hate it when a good charity
organization becomes corrupt, or just overly bureaucratic and useless.

--
Joyce

This is why I distrust most charities. Greed overtook the good
intentions. IIRC most of the food was donated so I don't know why they
were paying themselves ridiculous salaries and misappropriating funds.
There is a new organization called OneHarvest (the people who started it
used to work for Angel Food and want to fill the gap). It doesn't appear
to be available nationwide yet.

Jill

It killed me when Red Cross took donated insulin (INSULIN!!!) and SOLD
it to Katrina survivors! Just don't get me started on them!


--
Hugs,

CatNipped
See all our masters at: http://www.PossiblePlaces.com/CatNipped

See the RPCA FAQ site, created by "Yowie", maintained by Mark Edwards, at:
http://www.professional-geek.net/rpcablog/

Email: L(dot)T(dot)Crews(at)comcast(dot)net

On Nov 19, 9:01*am, CatNipped wrote:

It killed me when Red Cross took donated insulin (INSULIN!!!) and SOLD
it to Katrina survivors! *Just don't get me started on them!

They can do that?! Over here they's get reported to the Charities
Commission who could withdraw their charitable status and all the tax
breaks that go with it (The best of which is Gift Aid- where a charity
can claim back the tax of a donation from a UK basic rate taxpayer-
puts about £2.30 on every ten pounds donated)

Lesley

Slave of the Fabulous Furballs

On 11/19/2011 11:25 AM, Lesley wrote:
On Nov 19, 9:01 am, wrote:

It killed me when Red Cross took donated insulin (INSULIN!!!) and SOLD
it to Katrina survivors! Just don't get me started on them!

They can do that?! Over here they's get reported to the Charities
Commission who could withdraw their charitable status and all the tax
breaks that go with it (The best of which is Gift Aid- where a charity
can claim back the tax of a donation from a UK basic rate taxpayer-
puts about £2.30 on every ten pounds donated)

Lesley

Slave of the Fabulous Furballs

They got BILLIONS (with a B) in donations. Each Katrina survivor got
exactly $300. What are you going to do with $300 when you entire world
has been wiped from the face of the earth? Oh and they also served hot
meals for a few weeks - BAH!


--
Hugs,

CatNipped
See all our masters at: http://www.PossiblePlaces.com/CatNipped

See the RPCA FAQ site, created by "Yowie", maintained by Mark Edwards, at:
http://www.professional-geek.net/rpcablog/

Email: L(dot)T(dot)Crews(at)comcast(dot)net

wrote:
jmcquown wrote:

Angel Food Ministries. They went belly-up. It was supposed to be a
non-profit charity, and for a number of years it was. But then the founders
got greedy. Suddenly it wasn't about helping people feed a family anymore,
it was about how much money can I make running this organization? They were
paying themselves 6-figure salaries. They shut down before they could *be*
shut down. It's a shame, because they really did help some people with less
expensive groceries for a while.

Oh, I'm sorry to hear that. My mother was helped by them when she lived
in Florida. It was a really good deal.

Interesting, I had no idea they went belly-up. I was introduced to
them by a religious lady I know. I checked what they offered, but it
didn't appear to be a better deal than what can be found in the local
supermarkets when on sale, so I never shopped from them. What's more,
the combinations of what was inside the boxes did not match what I eat,
so I would have had to get rid of most of the stuff anyway.
Maybe in more expensive parts of the country they would have made
some sense, but not here (MD, Baltimore). Heck, even Aldi's regular
prices were lower than Angel Food's. Maybe if one qualified with like
food stamps or something like that it would be cheaper? I wouldn't know.

--
You'd be crazy to e-mail me with the crazy. But leave the div alone.
*
Whoever bans a book, shall be banished. Whoever burns a book, shall burn.

"CatNipped" wrote in message
...
On 11/19/2011 8:23 AM, jmcquown wrote:

wrote in message
...
jmcquown wrote:

Angel Food Ministries. They went belly-up. It was supposed to be a
non-profit charity, and for a number of years it was. But then the
founders
got greedy. Suddenly it wasn't about helping people feed a family
anymore,
it was about how much money can I make running this organization?
They were
paying themselves 6-figure salaries. They shut down before they
could *be*
shut down. It's a shame, because they really did help some people
with less
expensive groceries for a while.

Oh, I'm sorry to hear that. My mother was helped by them when she lived
in Florida. It was a really good deal. I hate it when a good charity
organization becomes corrupt, or just overly bureaucratic and useless.

--
Joyce

This is why I distrust most charities. Greed overtook the good
intentions. IIRC most of the food was donated so I don't know why they
were paying themselves ridiculous salaries and misappropriating funds.
There is a new organization called OneHarvest (the people who started it
used to work for Angel Food and want to fill the gap). It doesn't appear
to be available nationwide yet.

Jill

It killed me when Red Cross took donated insulin (INSULIN!!!) and SOLD it
to Katrina survivors! Just don't get me started on them!


--
Hugs,

CatNipped
See all our masters at: http://www.PossiblePlaces.com/CatNipped


My father despised the Red Cross decades before Hurricane Katrina. They
were supposed to notify him of my birth (he was in Okinawa). They didn't.
He found out I'd been born when a military buddy got a letter from his wife
and she happened to mention me. Dad never forgave them for that.

Jill

CatNipped wrote:


It killed me when Red Cross took donated insulin (INSULIN!!!) and SOLD
it to Katrina survivors! Just don't get me started on them!


My father (a WW1 vet) had little good to say about the Red Cross. The
Salvation Army and the YMCA provided free coffee to servicemen - the Red
Cross charged for it! (And back during WW2, when schoolchildren were
knitting squares to make afghans for the Red Cross, I heard they were
selling the afghans for which we'd contribut3ed the yarn and the labor.)