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#221
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Howard Berkowitz wrote: I hadn't been familiar with Temodar, but had a chance to read some of the relevant medical literature today. It's revolutionized the treatment of brain cancer, with effectiveness nothing before has ever approached. Good luck! Thanks. Rob is part of the third stage of testing for it; which, if I understand correctly, is for getting the dosages set up. I suspect that is part of the reason the Surgeon at UNC wants to keep up with the Temodar. The Drs. haven't agreed on a treatment plan yet, but when they do... Could use purrs. Rob and I have an appointment with Social Security on September 7th to turn in paperwork and, hopefully, find out if Rob qualifies for disability payments. Social Security is notorious for not finding anyone disabled so long as they can breathe. Pam S. |
#222
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Howard Berkowitz wrote: I hadn't been familiar with Temodar, but had a chance to read some of the relevant medical literature today. It's revolutionized the treatment of brain cancer, with effectiveness nothing before has ever approached. Good luck! Thanks. Rob is part of the third stage of testing for it; which, if I understand correctly, is for getting the dosages set up. I suspect that is part of the reason the Surgeon at UNC wants to keep up with the Temodar. The Drs. haven't agreed on a treatment plan yet, but when they do... Could use purrs. Rob and I have an appointment with Social Security on September 7th to turn in paperwork and, hopefully, find out if Rob qualifies for disability payments. Social Security is notorious for not finding anyone disabled so long as they can breathe. Pam S. |
#223
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Howard Berkowitz wrote: I hadn't been familiar with Temodar, but had a chance to read some of the relevant medical literature today. It's revolutionized the treatment of brain cancer, with effectiveness nothing before has ever approached. Good luck! Thanks. Rob is part of the third stage of testing for it; which, if I understand correctly, is for getting the dosages set up. I suspect that is part of the reason the Surgeon at UNC wants to keep up with the Temodar. The Drs. haven't agreed on a treatment plan yet, but when they do... Could use purrs. Rob and I have an appointment with Social Security on September 7th to turn in paperwork and, hopefully, find out if Rob qualifies for disability payments. Social Security is notorious for not finding anyone disabled so long as they can breathe. Pam S. |
#224
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Tanada wrote in message nk.net...
LOL wrote: WooHoo! That's marvelous news! If you'd like, I'm sure it can be arranged that all of rpca can nag him in turn by e-mail. :-D ------ Krista Who's HaPpY DaNcInG for you I like it. Rob's email is Nag away. Pam S. Kewl! I get to nag *someone else's* DH for a change! Mine will no doubt be relieved. ------ Krista |
#225
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Tanada wrote in message nk.net...
LOL wrote: WooHoo! That's marvelous news! If you'd like, I'm sure it can be arranged that all of rpca can nag him in turn by e-mail. :-D ------ Krista Who's HaPpY DaNcInG for you I like it. Rob's email is Nag away. Pam S. Kewl! I get to nag *someone else's* DH for a change! Mine will no doubt be relieved. ------ Krista |
#226
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Tanada wrote in message nk.net...
LOL wrote: WooHoo! That's marvelous news! If you'd like, I'm sure it can be arranged that all of rpca can nag him in turn by e-mail. :-D ------ Krista Who's HaPpY DaNcInG for you I like it. Rob's email is Nag away. Pam S. Kewl! I get to nag *someone else's* DH for a change! Mine will no doubt be relieved. ------ Krista |
#227
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Wow Pam - that's a lot to happen to you all - so much worry for you. Is the
Temodar hard to take - it sounds like it has side effects? My best wishes to you and Rob and crew - your sense of humour must serve you well and I admire you for it. Susan M Otis and Chester "Tanada" wrote in message .net... Briefly (though that isn't possible for me), we were coming back from vacation, when Rob had a seizure. The ER doc had a CT done and told us that there was some calcium build up, but nothing major that they could see and for Rob to go on steroids and stay on his meds. (Rob had decided that he couldn't remember to take his meds, so why bother) We got back and called Rob's oncologist who had Rob get an MRI. The radiologist reading the MRI decided that the tumors were growing back in two places. We were then sent to UNC/Chapel Hill, where we saw a neurosurgeon named Dr Mike Ewend, who said that he didn't see any signs that the tumors were growing and then put the MRI films before the experts in his group and on the tumor board. They agreed with him on the tumors not growing and on what he wants next, Temodar for the next 12 months, or however long Rob can tolerate it, whichever comes first. Rob's military oncologist, who's very good BTW, is wondering why put Rob back on Temodar if there is no signs of it growing back. The oncologist and surgeon now get to work out the best treatment for Rob. We're celebrating. Pam S. |
#228
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Wow Pam - that's a lot to happen to you all - so much worry for you. Is the
Temodar hard to take - it sounds like it has side effects? My best wishes to you and Rob and crew - your sense of humour must serve you well and I admire you for it. Susan M Otis and Chester "Tanada" wrote in message .net... Briefly (though that isn't possible for me), we were coming back from vacation, when Rob had a seizure. The ER doc had a CT done and told us that there was some calcium build up, but nothing major that they could see and for Rob to go on steroids and stay on his meds. (Rob had decided that he couldn't remember to take his meds, so why bother) We got back and called Rob's oncologist who had Rob get an MRI. The radiologist reading the MRI decided that the tumors were growing back in two places. We were then sent to UNC/Chapel Hill, where we saw a neurosurgeon named Dr Mike Ewend, who said that he didn't see any signs that the tumors were growing and then put the MRI films before the experts in his group and on the tumor board. They agreed with him on the tumors not growing and on what he wants next, Temodar for the next 12 months, or however long Rob can tolerate it, whichever comes first. Rob's military oncologist, who's very good BTW, is wondering why put Rob back on Temodar if there is no signs of it growing back. The oncologist and surgeon now get to work out the best treatment for Rob. We're celebrating. Pam S. |
#229
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Wow Pam - that's a lot to happen to you all - so much worry for you. Is the
Temodar hard to take - it sounds like it has side effects? My best wishes to you and Rob and crew - your sense of humour must serve you well and I admire you for it. Susan M Otis and Chester "Tanada" wrote in message .net... Briefly (though that isn't possible for me), we were coming back from vacation, when Rob had a seizure. The ER doc had a CT done and told us that there was some calcium build up, but nothing major that they could see and for Rob to go on steroids and stay on his meds. (Rob had decided that he couldn't remember to take his meds, so why bother) We got back and called Rob's oncologist who had Rob get an MRI. The radiologist reading the MRI decided that the tumors were growing back in two places. We were then sent to UNC/Chapel Hill, where we saw a neurosurgeon named Dr Mike Ewend, who said that he didn't see any signs that the tumors were growing and then put the MRI films before the experts in his group and on the tumor board. They agreed with him on the tumors not growing and on what he wants next, Temodar for the next 12 months, or however long Rob can tolerate it, whichever comes first. Rob's military oncologist, who's very good BTW, is wondering why put Rob back on Temodar if there is no signs of it growing back. The oncologist and surgeon now get to work out the best treatment for Rob. We're celebrating. Pam S. |
#230
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On Tue, 24 Aug 2004 02:42:00 GMT, Tanada wrote:
Could use purrs. Rob and I have an appointment with Social Security on September 7th to turn in paperwork and, hopefully, find out if Rob qualifies for disability payments. Social Security is notorious for not finding anyone disabled so long as they can breathe. Purrs that all goes well at the appointment, but don't get too discouraged if it takes several trips. As you say, they take their own sweet time before they make a decision. According to one of my customers, after he was injured and disabled on the job was getting workers comp was almost as bad. His worse experience came from the company he worked for, though, even worse than Social Security. What made that so frustrating was, that he had to go to court up in Oklahoma City many times. He and his wife would drive up from Lawton and many times they'd show up and the company lawyers wold get up and ask for a continuance or ask that he be seen by yet another specialist. After more than a year of that the judge in the case got fed up, called the lawyers from both sides into his office and told them that if they didn't settle he would. Even then the company's lawyers tried to stall at the next court date. -- Steve Touchstone, faithful servant of Sammy, Little Bit and Rocky [remove Junk for email] Home Page: http://www.sirinet.net/~stouchst/index.html Cat Pix: http://www.sirinet.net/~stouchst/animals.html |
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