If this is your first visit, be sure to check out the FAQ by clicking the link above. You may have to register before you can post: click the register link above to proceed. To start viewing messages, select the forum that you want to visit from the selection below. |
|
|
Thread Tools | Display Modes |
#241
|
|||
|
|||
I hadn't realized that Temodar is a chemo. Is it possible that the tumours
may disappear entirely or is it expected that they just get to a certain size and stay like that in perpetuity? Good luck on that SSDI fight - pompous might be what it takes to get *that* done :-) I thought Howard had some good advice about engaging the hospital to help, if possible. Pam = pompous??? Still scratching my head ... Susan M Otis and Chester .... and two little kids who don't want to go to bed ARGHHHHHHHHHHHHHHHH "Tanada" wrote in message ink.net... Susan M wrote: Wow Pam - that's a lot to happen to you all - so much worry for you. Is the Temodar hard to take - it sounds like it has side effects? My best wishes to you and Rob and crew - your sense of humour must serve you well and I admire you for it. Rob has handled the Temodar very well in the past. He was sicker than all get out the first day, but the oncologist prescribed some medicine for the nausea, and Rob had no problems after that. Like any Chemo, Temodar can/will affect one's blood counts. Fortunately, it is in pill form, so Rob won't have to sit for hours with an IV hanging over his head. They still haven't got hold of us, so we don't know what the deal is with it, yet. Paws are crossed here that they work it out and get us off limbo land. I'm working on the next phase, right now, getting Rob SSDI. After that fight, we'll take on the next one, whatever it is. Pam S. acting as pompous as usual |
#242
|
|||
|
|||
LOL wrote:
Tanada wrote in message nk.net... LOL wrote: WooHoo! That's marvelous news! If you'd like, I'm sure it can be arranged that all of rpca can nag him in turn by e-mail. :-D ------ Krista Who's HaPpY DaNcInG for you I like it. Rob's email is Nag away. Pam S. Kewl! I get to nag *someone else's* DH for a change! Mine will no doubt be relieved. Surely you can nag more than one at a time? ;-) -- Adrian (Owned by Snoopy & Bagheera) A house is not a home, without a cat. |
#243
|
|||
|
|||
LOL wrote:
Tanada wrote in message nk.net... LOL wrote: WooHoo! That's marvelous news! If you'd like, I'm sure it can be arranged that all of rpca can nag him in turn by e-mail. :-D ------ Krista Who's HaPpY DaNcInG for you I like it. Rob's email is Nag away. Pam S. Kewl! I get to nag *someone else's* DH for a change! Mine will no doubt be relieved. Surely you can nag more than one at a time? ;-) -- Adrian (Owned by Snoopy & Bagheera) A house is not a home, without a cat. |
#244
|
|||
|
|||
LOL wrote:
Tanada wrote in message nk.net... LOL wrote: WooHoo! That's marvelous news! If you'd like, I'm sure it can be arranged that all of rpca can nag him in turn by e-mail. :-D ------ Krista Who's HaPpY DaNcInG for you I like it. Rob's email is Nag away. Pam S. Kewl! I get to nag *someone else's* DH for a change! Mine will no doubt be relieved. Surely you can nag more than one at a time? ;-) -- Adrian (Owned by Snoopy & Bagheera) A house is not a home, without a cat. |
#245
|
|||
|
|||
So glad your feeling better about Rob,I'm sure he was under the influence of
the tumou when he was being a bit naughty, tumours tend to do that to people Cheers that things go really well from here on in Jean.P. Yowie wrote in message ... Yay! Glad its good news. Stress and steroids are *not* a good combination. Steroids can make people very aggresive and short tempered whilst at the same time leaving htem feeling very empowered (after a long time of feeling like crap, you suddenly feel *great*). Occasionally Ihave to take prednisone because of my asthma, and its like I've got permanant PMS in mood, but feel like I could take on the world (which of course makes it worse) Yowie "Tanada" wrote in message hlink.net... UPDATE: We finally got hold of Dr Ewend's secretary, who had Dr Ewend call us back. Dr Ewend was in surgery all day yesterday, so couldn't get hold of us, and we couldn't get hold of him. Anyway, the news is the best possible right now. The specialists (radiology pathologists specializing in brain tumors) agree with Dr Ewend that there is no signs that the tumor has grown. The recommended course now is to give Rob a course of large doses of temodar (I never spell this correctly) for a year, as a precaution to make sure the sucker is dead, nag at Rob to KEEP TAKING HIS MEDS, and keep in eye on him. After a year, or as long as he can tolerate the stuff, whichever comes first, Rob will be taken off the Temodar. We're still on MRIs every two to three months, and regular visits with the drs. I'm beginning to think I need to cross cross stitch a picture for them. I think now that the bad temper and inappropriate comments were because of stress and the steroids. Rob really doesn't remember saying any of those shocking comments or blowing up at anyone. I believe him. Rob has always admitted to any thing he's done, so long as he remembers it. Pam S. really relieved --- Outgoing mail is certified Virus Free. Checked by AVG anti-virus system (http://www.grisoft.com). Version: 6.0.736 / Virus Database: 490 - Release Date: 9/08/04 |
#246
|
|||
|
|||
So glad your feeling better about Rob,I'm sure he was under the influence of
the tumou when he was being a bit naughty, tumours tend to do that to people Cheers that things go really well from here on in Jean.P. Yowie wrote in message ... Yay! Glad its good news. Stress and steroids are *not* a good combination. Steroids can make people very aggresive and short tempered whilst at the same time leaving htem feeling very empowered (after a long time of feeling like crap, you suddenly feel *great*). Occasionally Ihave to take prednisone because of my asthma, and its like I've got permanant PMS in mood, but feel like I could take on the world (which of course makes it worse) Yowie "Tanada" wrote in message hlink.net... UPDATE: We finally got hold of Dr Ewend's secretary, who had Dr Ewend call us back. Dr Ewend was in surgery all day yesterday, so couldn't get hold of us, and we couldn't get hold of him. Anyway, the news is the best possible right now. The specialists (radiology pathologists specializing in brain tumors) agree with Dr Ewend that there is no signs that the tumor has grown. The recommended course now is to give Rob a course of large doses of temodar (I never spell this correctly) for a year, as a precaution to make sure the sucker is dead, nag at Rob to KEEP TAKING HIS MEDS, and keep in eye on him. After a year, or as long as he can tolerate the stuff, whichever comes first, Rob will be taken off the Temodar. We're still on MRIs every two to three months, and regular visits with the drs. I'm beginning to think I need to cross cross stitch a picture for them. I think now that the bad temper and inappropriate comments were because of stress and the steroids. Rob really doesn't remember saying any of those shocking comments or blowing up at anyone. I believe him. Rob has always admitted to any thing he's done, so long as he remembers it. Pam S. really relieved --- Outgoing mail is certified Virus Free. Checked by AVG anti-virus system (http://www.grisoft.com). Version: 6.0.736 / Virus Database: 490 - Release Date: 9/08/04 |
Thread Tools | |
Display Modes | |
|
|