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  #221  
Old August 24th 04, 03:42 AM
Tanada
external usenet poster
 
Posts: n/a
Default



Howard Berkowitz wrote:


I hadn't been familiar with Temodar, but had a chance to read some of
the relevant medical literature today. It's revolutionized the
treatment of brain cancer, with effectiveness nothing before has ever
approached.

Good luck!


Thanks. Rob is part of the third stage of testing for it; which, if I
understand correctly, is for getting the dosages set up. I suspect that
is part of the reason the Surgeon at UNC wants to keep up with the
Temodar. The Drs. haven't agreed on a treatment plan yet, but when they
do...

Could use purrs. Rob and I have an appointment with Social Security on
September 7th to turn in paperwork and, hopefully, find out if Rob
qualifies for disability payments. Social Security is notorious for not
finding anyone disabled so long as they can breathe.

Pam S.

  #222  
Old August 24th 04, 03:42 AM
Tanada
external usenet poster
 
Posts: n/a
Default



Howard Berkowitz wrote:


I hadn't been familiar with Temodar, but had a chance to read some of
the relevant medical literature today. It's revolutionized the
treatment of brain cancer, with effectiveness nothing before has ever
approached.

Good luck!


Thanks. Rob is part of the third stage of testing for it; which, if I
understand correctly, is for getting the dosages set up. I suspect that
is part of the reason the Surgeon at UNC wants to keep up with the
Temodar. The Drs. haven't agreed on a treatment plan yet, but when they
do...

Could use purrs. Rob and I have an appointment with Social Security on
September 7th to turn in paperwork and, hopefully, find out if Rob
qualifies for disability payments. Social Security is notorious for not
finding anyone disabled so long as they can breathe.

Pam S.

  #223  
Old August 24th 04, 03:42 AM
Tanada
external usenet poster
 
Posts: n/a
Default



Howard Berkowitz wrote:


I hadn't been familiar with Temodar, but had a chance to read some of
the relevant medical literature today. It's revolutionized the
treatment of brain cancer, with effectiveness nothing before has ever
approached.

Good luck!


Thanks. Rob is part of the third stage of testing for it; which, if I
understand correctly, is for getting the dosages set up. I suspect that
is part of the reason the Surgeon at UNC wants to keep up with the
Temodar. The Drs. haven't agreed on a treatment plan yet, but when they
do...

Could use purrs. Rob and I have an appointment with Social Security on
September 7th to turn in paperwork and, hopefully, find out if Rob
qualifies for disability payments. Social Security is notorious for not
finding anyone disabled so long as they can breathe.

Pam S.

  #224  
Old August 24th 04, 04:45 AM
LOL
external usenet poster
 
Posts: n/a
Default

Tanada wrote in message nk.net...
LOL wrote:



WooHoo! That's marvelous news! If you'd like, I'm sure it can be
arranged that all of rpca can nag him in turn by e-mail. :-D

------
Krista
Who's HaPpY DaNcInG for you


I like it. Rob's email is Nag away.

Pam S.



Kewl! I get to nag *someone else's* DH for a change! Mine will no
doubt be relieved.

------
Krista
  #225  
Old August 24th 04, 04:45 AM
LOL
external usenet poster
 
Posts: n/a
Default

Tanada wrote in message nk.net...
LOL wrote:



WooHoo! That's marvelous news! If you'd like, I'm sure it can be
arranged that all of rpca can nag him in turn by e-mail. :-D

------
Krista
Who's HaPpY DaNcInG for you


I like it. Rob's email is Nag away.

Pam S.



Kewl! I get to nag *someone else's* DH for a change! Mine will no
doubt be relieved.

------
Krista
  #226  
Old August 24th 04, 04:45 AM
LOL
external usenet poster
 
Posts: n/a
Default

Tanada wrote in message nk.net...
LOL wrote:



WooHoo! That's marvelous news! If you'd like, I'm sure it can be
arranged that all of rpca can nag him in turn by e-mail. :-D

------
Krista
Who's HaPpY DaNcInG for you


I like it. Rob's email is Nag away.

Pam S.



Kewl! I get to nag *someone else's* DH for a change! Mine will no
doubt be relieved.

------
Krista
  #227  
Old August 24th 04, 04:49 AM
Susan M
external usenet poster
 
Posts: n/a
Default

Wow Pam - that's a lot to happen to you all - so much worry for you. Is the
Temodar hard to take - it sounds like it has side effects? My best wishes
to you and Rob and crew - your sense of humour must serve you well and I
admire you for it.

Susan M
Otis and Chester


"Tanada" wrote in message
.net...
Briefly (though that isn't possible for me), we were coming back from
vacation, when Rob had a seizure. The ER doc had a CT done and told us
that there was some calcium build up, but nothing major that they could
see and for Rob to go on steroids and stay on his meds. (Rob had
decided that he couldn't remember to take his meds, so why bother) We
got back and called Rob's oncologist who had Rob get an MRI. The
radiologist reading the MRI decided that the tumors were growing back in
two places. We were then sent to UNC/Chapel Hill, where we saw a
neurosurgeon named Dr Mike Ewend, who said that he didn't see any signs
that the tumors were growing and then put the MRI films before the
experts in his group and on the tumor board. They agreed with him on
the tumors not growing and on what he wants next, Temodar for the next
12 months, or however long Rob can tolerate it, whichever comes first.
Rob's military oncologist, who's very good BTW, is wondering why put Rob
back on Temodar if there is no signs of it growing back. The oncologist
and surgeon now get to work out the best treatment for Rob. We're
celebrating.

Pam S.



  #228  
Old August 24th 04, 04:49 AM
Susan M
external usenet poster
 
Posts: n/a
Default

Wow Pam - that's a lot to happen to you all - so much worry for you. Is the
Temodar hard to take - it sounds like it has side effects? My best wishes
to you and Rob and crew - your sense of humour must serve you well and I
admire you for it.

Susan M
Otis and Chester


"Tanada" wrote in message
.net...
Briefly (though that isn't possible for me), we were coming back from
vacation, when Rob had a seizure. The ER doc had a CT done and told us
that there was some calcium build up, but nothing major that they could
see and for Rob to go on steroids and stay on his meds. (Rob had
decided that he couldn't remember to take his meds, so why bother) We
got back and called Rob's oncologist who had Rob get an MRI. The
radiologist reading the MRI decided that the tumors were growing back in
two places. We were then sent to UNC/Chapel Hill, where we saw a
neurosurgeon named Dr Mike Ewend, who said that he didn't see any signs
that the tumors were growing and then put the MRI films before the
experts in his group and on the tumor board. They agreed with him on
the tumors not growing and on what he wants next, Temodar for the next
12 months, or however long Rob can tolerate it, whichever comes first.
Rob's military oncologist, who's very good BTW, is wondering why put Rob
back on Temodar if there is no signs of it growing back. The oncologist
and surgeon now get to work out the best treatment for Rob. We're
celebrating.

Pam S.



  #229  
Old August 24th 04, 04:49 AM
Susan M
external usenet poster
 
Posts: n/a
Default

Wow Pam - that's a lot to happen to you all - so much worry for you. Is the
Temodar hard to take - it sounds like it has side effects? My best wishes
to you and Rob and crew - your sense of humour must serve you well and I
admire you for it.

Susan M
Otis and Chester


"Tanada" wrote in message
.net...
Briefly (though that isn't possible for me), we were coming back from
vacation, when Rob had a seizure. The ER doc had a CT done and told us
that there was some calcium build up, but nothing major that they could
see and for Rob to go on steroids and stay on his meds. (Rob had
decided that he couldn't remember to take his meds, so why bother) We
got back and called Rob's oncologist who had Rob get an MRI. The
radiologist reading the MRI decided that the tumors were growing back in
two places. We were then sent to UNC/Chapel Hill, where we saw a
neurosurgeon named Dr Mike Ewend, who said that he didn't see any signs
that the tumors were growing and then put the MRI films before the
experts in his group and on the tumor board. They agreed with him on
the tumors not growing and on what he wants next, Temodar for the next
12 months, or however long Rob can tolerate it, whichever comes first.
Rob's military oncologist, who's very good BTW, is wondering why put Rob
back on Temodar if there is no signs of it growing back. The oncologist
and surgeon now get to work out the best treatment for Rob. We're
celebrating.

Pam S.



  #230  
Old August 24th 04, 05:45 AM
Steve Touchstone
external usenet poster
 
Posts: n/a
Default

On Tue, 24 Aug 2004 02:42:00 GMT, Tanada wrote:

Could use purrs. Rob and I have an appointment with Social Security on
September 7th to turn in paperwork and, hopefully, find out if Rob
qualifies for disability payments. Social Security is notorious for not
finding anyone disabled so long as they can breathe.

Purrs that all goes well at the appointment, but don't get too
discouraged if it takes several trips. As you say, they take their own
sweet time before they make a decision. According to one of my
customers, after he was injured and disabled on the job was getting
workers comp was almost as bad.

His worse experience came from the company he worked for, though, even
worse than Social Security. What made that so frustrating was, that he
had to go to court up in Oklahoma City many times. He and his wife
would drive up from Lawton and many times they'd show up and the
company lawyers wold get up and ask for a continuance or ask that he
be seen by yet another specialist. After more than a year of that the
judge in the case got fed up, called the lawyers from both sides into
his office and told them that if they didn't settle he would. Even
then the company's lawyers tried to stall at the next court date.
--
Steve Touchstone,
faithful servant of Sammy, Little Bit and Rocky

[remove Junk for email]
Home Page:
http://www.sirinet.net/~stouchst/index.html
Cat Pix: http://www.sirinet.net/~stouchst/animals.html
 




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