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Good News, We Hope: OT, Probably Long, Boring and all the other warnings



 
 
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  #241  
Old August 25th 04, 03:14 AM
Susan M
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I hadn't realized that Temodar is a chemo. Is it possible that the tumours
may disappear entirely or is it expected that they just get to a certain
size and stay like that in perpetuity?

Good luck on that SSDI fight - pompous might be what it takes to get *that*
done :-) I thought Howard had some good advice about engaging the hospital
to help, if possible.

Pam = pompous??? Still scratching my head ...

Susan M
Otis and Chester
.... and two little kids who don't want to go to bed ARGHHHHHHHHHHHHHHHH

"Tanada" wrote in message
ink.net...


Susan M wrote:
Wow Pam - that's a lot to happen to you all - so much worry for you. Is

the
Temodar hard to take - it sounds like it has side effects? My best

wishes
to you and Rob and crew - your sense of humour must serve you well and I
admire you for it.


Rob has handled the Temodar very well in the past. He was sicker than
all get out the first day, but the oncologist prescribed some medicine
for the nausea, and Rob had no problems after that. Like any Chemo,
Temodar can/will affect one's blood counts. Fortunately, it is in pill
form, so Rob won't have to sit for hours with an IV hanging over his
head. They still haven't got hold of us, so we don't know what the deal
is with it, yet. Paws are crossed here that they work it out and get us
off limbo land. I'm working on the next phase, right now, getting Rob
SSDI. After that fight, we'll take on the next one, whatever it is.

Pam S. acting as pompous as usual



  #242  
Old August 25th 04, 12:42 PM
Adrian
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LOL wrote:
Tanada wrote in message
nk.net...
LOL wrote:



WooHoo! That's marvelous news! If you'd like, I'm sure it can be
arranged that all of rpca can nag him in turn by e-mail. :-D

------
Krista
Who's HaPpY DaNcInG for you


I like it. Rob's email is Nag away.

Pam S.



Kewl! I get to nag *someone else's* DH for a change! Mine will no
doubt be relieved.


Surely you can nag more than one at a time? ;-)
--
Adrian (Owned by Snoopy & Bagheera)
A house is not a home, without a cat.


  #243  
Old August 25th 04, 12:42 PM
Adrian
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Posts: n/a
Default

LOL wrote:
Tanada wrote in message
nk.net...
LOL wrote:



WooHoo! That's marvelous news! If you'd like, I'm sure it can be
arranged that all of rpca can nag him in turn by e-mail. :-D

------
Krista
Who's HaPpY DaNcInG for you


I like it. Rob's email is Nag away.

Pam S.



Kewl! I get to nag *someone else's* DH for a change! Mine will no
doubt be relieved.


Surely you can nag more than one at a time? ;-)
--
Adrian (Owned by Snoopy & Bagheera)
A house is not a home, without a cat.


  #244  
Old August 25th 04, 12:42 PM
Adrian
external usenet poster
 
Posts: n/a
Default

LOL wrote:
Tanada wrote in message
nk.net...
LOL wrote:



WooHoo! That's marvelous news! If you'd like, I'm sure it can be
arranged that all of rpca can nag him in turn by e-mail. :-D

------
Krista
Who's HaPpY DaNcInG for you


I like it. Rob's email is Nag away.

Pam S.



Kewl! I get to nag *someone else's* DH for a change! Mine will no
doubt be relieved.


Surely you can nag more than one at a time? ;-)
--
Adrian (Owned by Snoopy & Bagheera)
A house is not a home, without a cat.


  #245  
Old August 28th 04, 12:03 PM
Jean Hobbs
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So glad your feeling better about Rob,I'm sure he was under the influence of
the tumou when he was being a bit naughty, tumours tend to do that to people
Cheers that things go really well from here on in Jean.P.
Yowie wrote in message
...
Yay! Glad its good news.

Stress and steroids are *not* a good combination. Steroids can make people
very aggresive and short tempered whilst at the same time leaving htem
feeling very empowered (after a long time of feeling like crap, you

suddenly
feel *great*).

Occasionally Ihave to take prednisone because of my asthma, and its like
I've got permanant PMS in mood, but feel like I could take on the world
(which of course makes it worse)

Yowie

"Tanada" wrote in message
hlink.net...

UPDATE: We finally got hold of Dr Ewend's secretary, who had Dr Ewend
call us back. Dr Ewend was in surgery all day yesterday, so couldn't
get hold of us, and we couldn't get hold of him.

Anyway, the news is the best possible right now. The specialists
(radiology pathologists specializing in brain tumors) agree with Dr
Ewend that there is no signs that the tumor has grown. The recommended
course now is to give Rob a course of large doses of temodar (I never
spell this correctly) for a year, as a precaution to make sure the
sucker is dead, nag at Rob to KEEP TAKING HIS MEDS, and keep in eye on
him. After a year, or as long as he can tolerate the stuff, whichever
comes first, Rob will be taken off the Temodar. We're still on MRIs
every two to three months, and regular visits with the drs. I'm
beginning to think I need to cross cross stitch a picture for them.

I think now that the bad temper and inappropriate comments were because
of stress and the steroids. Rob really doesn't remember saying any of
those shocking comments or blowing up at anyone. I believe him. Rob
has always admitted to any thing he's done, so long as he remembers it.



Pam S. really relieved



---
Outgoing mail is certified Virus Free.
Checked by AVG anti-virus system (http://www.grisoft.com).
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  #246  
Old August 28th 04, 12:03 PM
Jean Hobbs
external usenet poster
 
Posts: n/a
Default

So glad your feeling better about Rob,I'm sure he was under the influence of
the tumou when he was being a bit naughty, tumours tend to do that to people
Cheers that things go really well from here on in Jean.P.
Yowie wrote in message
...
Yay! Glad its good news.

Stress and steroids are *not* a good combination. Steroids can make people
very aggresive and short tempered whilst at the same time leaving htem
feeling very empowered (after a long time of feeling like crap, you

suddenly
feel *great*).

Occasionally Ihave to take prednisone because of my asthma, and its like
I've got permanant PMS in mood, but feel like I could take on the world
(which of course makes it worse)

Yowie

"Tanada" wrote in message
hlink.net...

UPDATE: We finally got hold of Dr Ewend's secretary, who had Dr Ewend
call us back. Dr Ewend was in surgery all day yesterday, so couldn't
get hold of us, and we couldn't get hold of him.

Anyway, the news is the best possible right now. The specialists
(radiology pathologists specializing in brain tumors) agree with Dr
Ewend that there is no signs that the tumor has grown. The recommended
course now is to give Rob a course of large doses of temodar (I never
spell this correctly) for a year, as a precaution to make sure the
sucker is dead, nag at Rob to KEEP TAKING HIS MEDS, and keep in eye on
him. After a year, or as long as he can tolerate the stuff, whichever
comes first, Rob will be taken off the Temodar. We're still on MRIs
every two to three months, and regular visits with the drs. I'm
beginning to think I need to cross cross stitch a picture for them.

I think now that the bad temper and inappropriate comments were because
of stress and the steroids. Rob really doesn't remember saying any of
those shocking comments or blowing up at anyone. I believe him. Rob
has always admitted to any thing he's done, so long as he remembers it.



Pam S. really relieved



---
Outgoing mail is certified Virus Free.
Checked by AVG anti-virus system (http://www.grisoft.com).
Version: 6.0.736 / Virus Database: 490 - Release Date: 9/08/04




 




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